Quality of life among children with severe and chronic ophthalmic conditions

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Abstract

Purpose

To evaluate the impact on the quality of life of children from 8 to 18 years-old of a rare and serious ophthalmological condition (cataract and congenital glaucoma).

Methods

Analysis of the answers obtained between May and November,2012 by autoquestionnaire( KIDSCREEN-10) among children from 8 to 18 years-old and from their parents and approaching their physical, social, moral and educational wellness. The children are patients of a department of pediatric ophthalmology of the South of France and followed-up on the long term for chronic and severe ophthalmological conditions.

Results

50 children (mean age 12 years) and 45 parents participated in this study. We register a lack of energy and an impression to be decreased to the everyday life to 32% of the children according to their parents(n: 14) and 27%(n: 13) according to the children. A feeling of sadness is present according to the parents for 43% of the staff(n: 19) and to 36% of the children according to their statements(n: 18). The solitude is felt at 64 %(n: 28)of children according to their parents against 30% (n: 15) according to the children. The school life is affected according to the parents for 82% of the children(n: 37) and 70% when we question the children (n: 35). The global appreciation of the child's health is degraded at 30 % of the children (n: 13) according to their parents against 22% according to the children (n:11).

Conclusion

Chronic ophthalmological conditions have certain noxious impact on the quality of life of the children and particularly in their social relationships and their school life. This study shows a good correlation between the felt of the parents on the real-life experience of their children and the appreciation which make the children themselves.

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