Patients' and Family Members' Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study

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Understanding the medical decision-making and information disclosure preferences is important for care quality.


To examine the feasibility of using the questionnaires and to identify modifications needed in the following study.


Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires.


More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions.


Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.

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