Surviving with Trisomy 13: Provider and Parent Perspectives and the Role of the Pediatric Palliative Care Program

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Abstract

Trisomy 13 typically denotes an overall poor prognosis in the setting of multisystem anomalies. Through a provider and parent perspective, this case illustrates the benefit of hope, communication, and teamwork through the integration of a palliative care team in the care of a medically complex child with trisomy 13, resulting in enhance survival and perceived quality of life for patient and family.

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