Ethical and policy issues in pediatric genetics
Patient advocacy in newborn screening: Continuities and discontinuities
Communication of positive newborn screening results for sickle cell disease and sickle cell trait: Variation across states
Waiving informed consent in newborn screening research: Balancing social value and respect
Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion
Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study
“You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)
Living with genetic risk: Effect on adolescent self-concept
Should genetic testing for BRCA1/2 be permitted for minors? Opinions of BRCA mutation carriers and their adult offspring
Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists