Networking the country to promote health and scientific discovery
Launching PCORnet, a national patient-centered clinical research network
Patient-powered research networks
Changing the research landscape
The ADVANCE network
Developing a data infrastructure for a learning health system
Louisiana Clinical Data Research Network
Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS)
The Mid-South Clinical Data Research Network
The Greater Plains Collaborative
Sharing behavioral data through a grid infrastructure using data standards
Query Health
Blue Button use by patients to access and share health record information using the Department of Veterans Affairs’ online patient portal
Sociotechnical challenges to developing technologies for patient access to health information exchange data
Professional and geographical network effects on healthcare information exchange growth
Personal health records
Participatory surveillance of diabetes device safety
Is the quality of data in an electronic medical record sufficient for assessing the quality of primary care?
A study in transfer learning
A personally controlled electronic health record for Australia
Data governance requirements for distributed clinical research networks
Agreement of Medicaid claims and electronic health records for assessing preventive care quality among adults
Patient-reported outcome measures
Clinical research data warehouse governance for distributed research networks in the USA
Patient access to medical records and healthcare outcomes
Patient engagement in the inpatient setting
How outcomes are achieved through patient portals
N-CANDA data integration