There is a paucity of illness accounts of men with chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS), despite a significant level of prevalence and burden of disease. This qualitative study thus elicited twelve accounts from men suffering with CP/CPPS.Methods
Narrative analysis was employed, focusing primarily on narrative content.Results
Three major narrative themes were identified: (1) Medical stories: Blame and shame; (2) The Erratic nature of CP/CPPS; and (3) Ongoing struggles for coping and cures and the Search for meaning.Conclusions
Recommendations were made for health care providers and increasing the internal agency, support and activism of men with this debilitating condition.