Priority setting for end-of-life care

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Abstract

Introduction

End-of-life (EoL) care is an under-researched area. It is therefore vital to focus on priorities that are likely to bring the most benefit to patients, carers, and families.

Aim

This project aimed to identify EoL research priorities of Healthcare Professionals (HCPs) and carers in Greater Manchester.

Methods

Following a scoping exercise of EOL services in Greater Manchester, CLAHRC GM identified six EOL local research topics for further exploration within the 10 national priorities outlined by PeolcPSP.

Methods

CLAHRC GM held a priority setting event to consult with 32 HCPs and separate consultations with 26 carers facilitated by local carer groups from Manchester, Salford, and Bury. Carers and HCPs selected their priorities from the topics.

Results

Combining carer and HCP responses, the topics of shared priority were:

Results

Whilst carers emphasised training and education as the priority and HCPs focused more on advance care planning, it was clear that all topics had importance to both groups.

Results

HCPs also identified important research questions within their chosen topics.

Conclusions

This study provides successful procedures for engaging with stakeholders to develop local priorities to guide EoL research of relevance to HCPs and user representatives.

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