I felt strongly about improving the services for end of life relatives staying for long periods with their loved ones. I wanted to find out what they felt was missing from our care, and how we could improve their time with us.Method
I conducted a survey of twenty EOL relatives asking about their experience generally and what could be improved. I asked the questions in a safe place, questions around this are obviously of a sensitive nature and I wanted them to feel free to answer openly and honestly.Conclusion/actions
Good palliative care is essential - for a patient’s loved ones as well as themselves. I would like to continue to make changes and create some positives in what can be otherwise a wholly negative experience.