DOI: 10.1097/01.ccm.0000474139.91085.e0
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Issn Print: 0090-3493
Publication Date: 2015/12/01
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Excerpt
Methods: We recruited a cohort of patients admitted to our urban, inner city, academic PICU over a period of 13 weeks. We then collected functional status assessments at 6 mo and 3 yr based on the Functional Status Scale (FSS), a validated measure, via telephone surveys of the parent/guardian.
Results: 303 patients were admitted to the The University of Chicago Comer Children’s Hospital PICU from June to August 2012; 253 of whom were eligible for participation. Of those surviving to discharge, 130 patients consented to long-term follow-up. We obtained 6-month follow up outcomes for 76 patients (58.4%) and for 40 patients (30.7%) at 3 yr. Mortality was low (4.6%) at 6 mo and remained low (6.1%) at 3 yr. Patients exhibited mild dysfunction at both 6 mo and 3 yr (mean FSS, 7.69+/- 2.53; 7.97+/- 2.62). FSS did not change over time (Δ 0.28, p =0.13). At 3 yr, 31.3% of survivors had moderate dysfunction in at least one domain of the FSS and 37.5% had moderate to severe dysfunction on more than one domain.
Conclusions: Despite low impairment as measured by overall functional status scores, a high proportion of PICU survivors continue to have impaired function in one or more domains. Functional status does not appear to improve between 6 mo and 3 yr after discharge in the SOS. Improved understanding of the factors affecting the well-being of these children could allow significant gains via interventions such as therapeutic and medical services, improved access or utilization of these services, or better social support of families and survivors. Further study of survivors will provide healthcare providers with a more robust clinical picture of the unique issues faced by this high-risk population.
