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Although there continues to be sporadic reporting of small numbers of patients with neurosarcoidosis, relatively little progress is being made in defining this condition in more detail, making it difficult for clinicians to be confident in their diagnoses and treatments. Although groups continue to use retrospective data to extrapolate diagnostic criteria, there is a need for a multinational collaboration to produce a prospective data set that would more adequately inform the diagnostic and therapeutic process for individual clinicians.

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