Preference-based measure of social participation from the Handicap Scale for Children

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Abstract

Objective:

To establish a model that estimates a preference-based measure (valuation) of social participation for children between 8 and 18 years of age from the Handicap Scale for Children (HSC), a validated questionnaire for children with a chronic illness.

Methods:

Vignettes of the HSC classification system were valued by a representative sample of 249 persons aged 18 years onwards. Linear and nominal scale (mixed-effects) models were used to analyze the valuations of the vignettes.

Results:

We established a model that performed better than a model that simply sums up the levels of each dimension.

Conclusion:

We obtained a measure that can be used for assessing need, for quality assurance and for evaluating interventions on a group level aiming to increase social participation in children with chronic illnesses.

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