LVAD patients' and surrogates' perspectives on SPIRIT-HF: An advance care planning discussion

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Abstract

Objectives:

To describe LVAD patients' and surrogates' experiences with, and perspectives on SPIRIT-HF, an advance care planning (ACP) intervention.

Background:

ACP is important for patients with LVAD, yet little is known about their experiences or those of their surrogates who have participated in ACP discussions.

Methods:

We used qualitative content analysis techniques to conduct a secondary analysis of 28 interviews with patients with LVAD (n = 14) and their surrogates (n = 14) who had participated in an RCT pilot study of SPIRIT-HF.

Results:

Main themes from the data include: 1) sharing their HF stories was very beneficial; 2) participating in SPIRIT-HF led to greater peace of mind for patients and surrogates; 3) “one size does not fit all” when it comes to timing of ACP discussions.

Conclusions:

An understanding patient and surrogate perspectives may inform clinicians' approach to ACP discussions.

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