Background: Patient personal opinions should be taken into account as they can be useful in the design of future clinical tools. We aim to provide information about the opinions of Inflammatory Bowel Disease (IBD) patients about a clinical tool designed by IBD nurses to improve health-care.
Methods: The clinical tool is compounded by three elements: an i-pad size folder to keep copies of medical appointments and reports, a notebook to list symptoms that worry patient about or concerns and questions before each medical visit and some IBD medication information leaflets. After 6 month an anonymous questionnaire was administered to assess the usefulness of this tool.
Results: 77 IBD patients were enrolled in this study: 43 ulcerative colitis (56%), 34 Crohn's disease (44%). The patients were 39 male (51%), mean age 46.4 (13) years, time since diagnosis 13.5 (9.5) years and 27 (36%) were on combination therapy. Finally 61 patients (79.2%) answered the questionnaire. Altogether, 87.7% used the folder and 12.3% did not employ it. The i-pad size folder was valued as useful by 90.2% of patients who had used it. Regarding the medication information leaflets, 44 patients (72%) read all the information and 11 (18%) the most part of it. 84% patients said they were given sufficient information, 4 patients demanded more information on side effects of medicines and 1 subject considered that a less technical language in medication leaflets should be used. The notebook was not used by 39 patients (64%).
The overall assessment of this tool reached a value of 8 (2) points in a visual analogue scale VAS (1–10 range).
Conclusions: Our clinical tool designed to improve health care for IBD patients achieved a very positive assessment by users, specially the folder and the medication information leaflets. Exploring the opinion of the ultimate users of the clinical tools is worth, because it allows us to identify strengths and weaknesses of it.