Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

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Abstract

Background

Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions.

Methods

A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care.

Results

Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child.

Conclusion

The key attributes are outlined in a practical framework of involvement which may promote parent–professional collaboration for families of children with long-term conditions.

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