Parents' experiences of healthcare provider actions when their child dies: An integrative review of the literature

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Abstract

Purpose.

To review, critique and synthesise current research studies that examine parental perceptions of healthcare provider actions during and after the death of a child.

Conclusions.

Five main themes were synthesised from the literature: staff attitudes and affect; follow-up care and ongoing contact; communication; attending to the parents; and continuity of care.

Practice Implications.

This review helps to identify important aspects of paediatric end-of-life care as recognised by parents, with the intention of placing the family at the centre of any future end-of-life care education or policy/protocol development.

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