Improving care for children with Down's syndrome


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Abstract

This article refers to a personal narrative in which the parents of a child born with Down's syndrome, who subsequently required surgical intervention for a duodenal atresia, experienced a poor standard of care. It discusses how healthcare organisations can improve the service provided for such patients by making reasonable adjustments, setting up pre-admission services, introducing hospital passports and allocating acute liaison nurses to the parents, and urges all healthcare staff to sign up to Mencap's (2010) Getting it Right charter.Jayne Harris and colleagues discuss how healthcare staff can meet the needs of children and their families in acute care settings

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