The Experiences of Young Adults With Hodgkin Lymphoma Transitioning to Survivorship: A Grounded Theory Study

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To explore the experiences of young adults with Hodgkin lymphoma during the first year following the end of initial treatment.

Research Approach:

A qualitative grounded theory study.


Interviews with patients recruited from three cancer centers in England.


10 Hodgkin lymphoma survivors (four men and six women aged 21–39 years) recruited as part of a larger study of 28 young adult cancer survivors.

Methodologic Approach:

Semistructured interviews were conducted about two months after treatment completion, and follow-up interviews were conducted seven months later. The authors’ grounded theory of positive psychosocial adjustment to cancer provided the conceptual framework.


Positive reframing, informal peer support, acceptance, and normalization helped young adults dismantle the threats of Hodgkin lymphoma during the course of treatment. However, they described losing a sense of security following treatment completion. Greater age-specific information to enable better preparation for the future was desired regarding body image, fertility, sexual relationships, work, and socializing.


Informal support mechanisms, like peer support and patient navigator interventions, may be useful ways to further support young adults after treatment completion.


Positive psychosocial adjustment to cancer survivorship in young adults is facilitated by having informal peer support; being able to positively reframe, accept, and normalize their experience; and being prepared for the future.

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