Genetic Discrimination Lawsuit Raises Broader Concerns About Testing, Privacy: Case Involves Middle School Student Impacted by Results of Genetic Screening Test as Newborn

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(Abstracted from Am J Med Genet A 2016;170(5):1111–1112)

This article discusses the legal battle of a middle school student, Colman Chadam, against a California public school district that he felt had discriminated against him based on the results of genetic screening tests for cystic fibrosis (CF) that he underwent as a newborn. Colman's parents claimed that in 2012, the Palo Alto Unified School District violated 2 federal laws enacted to protect people with disabilities—the Americans with Disabilities Act and Section 504 of the Rehabilitation Act, and the First Amendment right to privacy—when his teacher divulged that Colman carried genetic markers for CF, information that was received by the school at the time of his enrollment.

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