Cancer Moonshot Data and Technology Team: Enabling a National Learning Healthcare System for Cancer to Unleash the Power of Data

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Excerpt

The vision of a National Learning Healthcare System for Cancer has many ramifications, including our ability to identify factors contributing to disparities in the dissemination of standard of care and access to high‐quality oncology services and to identify populations at risk for initial disease, recurrence, and nonresponse to treatment. Data need to be consistently captured and shared, regardless of whether the patient is a clinical trial participant and where in the healthcare system a patient receives care. Three initial priority areas have surfaced as important steps towards this vision:
These three areas will lay the foundations for a National Learning Healthcare System for Cancer, where we can learn from the contributed knowledge and experience of every cancer patient.
This article highlights the federal activities launched as part of the Cancer Moonshot to begin building the foundation of a National Learning Healthcare System for Cancer, as illustrated in Figure1. The exemplars here reflect some of the efforts that aim to impact cancer prevention, early detection, screening, treatment, and outcomes for cancer patients. The National Learning Healthcare System for Cancer will contribute to the scientific evidence base necessary to understand cancer, to design more effective strategies to reduce the burden of cancer, and to continuously improve and adjust cancer care.
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