Quality predictors of parental satisfaction after birth of infants with life-limiting conditions

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Abstract

Aim:

This study examines parental satisfaction with care received in the context of a life-limiting foetal diagnosis and subsequent birth.

Methods:

Survey methods were utilised to embed the Quality Indicators (QI) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: ‘The Voice of Parents’.

Results:

The web-based survey had a final sample of N = 405 parent responders. Overall, parents reported satisfaction with care (80.2%; n = 393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41-item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported.

Conclusion:

This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life-limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider–patient communication and bereavement interventions.

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