Measuring the Work Impact of Caregiving for Individuals With Schizophrenia and/or Schizoaffective Disorder With the Caregiver Work Limitations Questionnaire (WLQ)

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The aim of this study was to test the reliability, validity, and responsiveness of the Caregiver Work Limitations Questionnaire (WLQ) for employed caregivers of individuals with schizophrenia and/or schizoaffective disorder.


A cross-sectional web-based survey with test/retest and responsiveness test components was administered to informal caregivers. Using data from employed caregivers, psychometric tests were performed of the questionnaire's four at-work limitation scales and work absence score.


Of 1142 eligible caregivers, 710 (62.2%) were employed. On the basis of the 4-week recall period, caregivers were limited in performing work tasks approximately between 20% and 30% of the time on average and absent a mean of 2 to 3 days. With few exceptions, the Caregiver WLQ demonstrated scale homogeneity, test/retest reliability, construct validity, and responsiveness to change.


The Caregiver WLQ provides new information about the impact of caregiving on employment.

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