Language as Advocacy
While acknowledging that persons with disability may self-identify as “disabled” and accordingly may choose identify-first language to describe themselves,1 I would argue that as rehabilitation scientists we have an obligation to use person-first language. Likewise, studies include participants or subjects. Describing individuals as patients subjugates their personhood by defining them according to a role wherein they are cared for by a healthcare provider. While this term is appropriate when describing clinical care, it is not appropriate when referring to individuals who have freely consented to participate in our studies. The language we use in our scientific presentations and publications offers opportunities for advocacy. Rehabilitation journals have led the way in these efforts; however, readers of journals outside our field may have noted that many of those journals still need to catch up in terms of appropriate and respectful language. Physical therapist researchers routinely publish in science journals outside of rehabilitation. It has been gratifying to note that they persist in their use of respectful language even when not required by the journal. These presentations and publications are accessed by others outside our field, thus serving as a teachable moment.
As health professionals, we have many opportunities for advocacy through the language we use, beginning early in our interactions with patients/clients and their families. In my own work as a neurorehabilitation scientist, I routinely receive calls from family members of individuals who have recently experienced a spinal cord injury. Since persons with physical disability are a minority in the US population at large, most often family members have had little prior involvement with the disability community. This is an occasion when we can support families not only with our clinical skills but also with our ability to offer the perspective that our backgrounds give us. While experiencing a neurologic health conditions certainly is a life-altering event in many cases, we know that a rich, joyful, and full life is possible for persons with disability. Keeping that frame of reference, and using respectful language, has value for adjusting the lens through which a future life is viewed. When a person with disability acquires this frame of reference, it sets the stage for inclusion and full participation, representing the first step in achieving those expectations.