Large Databases for Pediatric Research on Children with Autism Spectrum Disorder

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Abstract

Objective:

This article reviews the data available in 3 large databases for use in conducting studies of children with autism spectrum disorder (ASD).

Methods:

The article describes the data structure, data elements, and strengths and weaknesses of the 3 data sets.

Results:

Each of the 3 data sets, the Interactive Autism Network (IAN), the Autism Treatment Network (ATN), and PEDSnet have large cohorts of children with ASD. IAN has strengths in patient-reported measures, ATN in clinical characterization, and PEDSnet in health care encounters and electronic medical record data.

Conclusion:

The data sets described here have potential for further studies that could help improve the care and well-being of children with ASD and their families.

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