Pursuing Normality: Reflections on Cancer Survivorship Care of Lymphoma Survivors

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Abstract

Background

The present study explored the reflections on cancer survivorship care of lymphoma survivors in active treatment. Lymphoma survivors have survivorship care needs, yet their participation in cancer survivorship care programs is still reported as low.

Objective

The aim of this study was to understand the reflections on cancer survivorship care of lymphoma survivors to aid the future planning of cancer survivorship care and overcome barriers to participation.

Methods

Data were generated in a hematological ward during 4 months of ethnographic fieldwork, including participant observation and 46 semistructured interviews with 9 lymphoma survivors. Interpretive description methodology and social practice theory guided the analytical framework.

Results

“Pursuing normality” was an overall finding and was comprised of 2 overarching patterns, “future prospects” and “survivorship care perceptions,” both implying an influence on whether to participate in cancer survivorship care programs. Because of “pursuing normality,” 8 of 9 participants opted out of cancer survivorship care programming due to prospects of “being cured” and perceptions of cancer survivorship care as “a continuation of the disease.”

Conclusion

The findings add to our understanding of possible barriers for participation in cancer survivorship care and outline important aspects to account for in the practice of health professionals.

Implications for Practice

The study findings may guide practice to establish a systematic approach for providing information to cancer survivors regarding the possible management of their symptoms and of the content and purpose of cancer survivorship care.

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