Disclosures of Cystic Fibrosis–Related Information to Romantic Partners

    loading  Checking for direct PDF access through Ovid


In this article, we offer insights into how individuals with cystic fibrosis (CF) share information about their disease with a romantic partner. Using communication privacy management as a sensitizing theoretical construct, four themes emerged following 13 qualitative interviews with persons with CF. Themes about sharing CF-related information with a romantic partner include weighing the risks and benefits of sharing information, the role of health-related triggered rules, the motivations for disclosures, and the reactions from outsiders. Implications of the research suggest a need for more nuanced understandings of how privacy rules are communicated in relationships, how the mismanagement of co-owned information influences future disclosures, how the public–private nature of rare genetic illnesses is managed, and how people with genetic illnesses make disclosure decisions.

    loading  Loading Related Articles